HeSANDA enters a new operational stage
We’re pleased to announce that the Australian Research Data Commons (ARDC)’s HeSANDA Clinical Trials partnership has entered a new operational stage of the collaboration to facilitate the sharing of clinical trial data on a national scale.
QCIF is part of the Queensland node, one of 9 nodes that represent 72 research organisations across Australia, covering most of Australia’s states, territories, and health researchers. The 9 nodes help researchers and data custodians contribute metadata to the Health Data Australia catalogue and manage data sharing requests.
The new ARDC co-investment in the second phase of the HeSANDA Clinical Trials partnership aims to:
improve the quality, scalability and sustainability of HeSANDA, including policies, procedures, and systems
increase the uptake of Health Data Australia by partner organisations and clinical trials
align and coordinate activity across the HeSANDA network.
QCIF, CSIRO’s Australian e-Health Research Centre (AEHRC), and Health Translation Queensland (HTQ) lead HeSANDA’s Queensland node as a collaboration, led by a Steering Committee chaired by AEHRC CEO Dr David Hansen.
Dr. Dom Gorse, Director of QCIF Data Science, said, ‘I believe the HeSANDA initiative is the first step in ensuring that sensitive health data, such as clinical trials data, is Findable, Accessible, Interoperable, and Reusable (FAIR). By promoting robust data sharing practices and enhancing our systems, we will empower researchers to make significant advances in medical research and ultimately improve health outcomes for all Australians.’
The QCIF team, including Senior Health Informatician Kathy Dallest and Software Engineer Diego Guillen, built the technical infrastructure of the node by deploying the Dataverse application, along with operational processes to enable the reuse of clinical trial data under the FAIR (Findable, Accessible, Interoperable and Reusable) data principles.
A Digital Object Identifier (DOI) is minted via DataCite when the trial metadata meets the HeSANDA specifications and is subsequently published to the HDA platform for discoverability by national and international registers, increasing the visibility of the work of Queensland researchers.
Queensland organisations may register their interest in publishing their data set metadata via QCIF’s online form.
Learn more 🔗https://ardc.edu.au/article/clinical-trial-data-partnership-bolsters-data-sharing/